Helping Kids Understand Alzheimer's Without Fear

Alzheimer's often reveals itself around the holiday table, when families see one another more closely than usual. My guest this week, author and longtime caregiver Carol Steinberg, knows that experience well. Her father was diagnosed decades ago, long before the disease was widely understood, and the journey reshaped her life. She eventually helped lead one of the largest Alzheimer's organizations in the country and continues to write for Voices of Alzheimer's, staying close to the families living with this disease every day.

We talked about what gives her hope now. More people are being diagnosed earlier. New treatments can slow the progression for some. Communities are offering more practical support, and families are learning how to build what Carol calls "bunkers," healthy habits and safeguards that strengthen the whole household.

One of the most meaningful parts of our conversation was how Alzheimer's affects children and grandchildren. Carol regrets that she sometimes pulled her own daughters back from their grandfather. Her new children's book, Come Grandpa Meow, Let's Fly, helps families give kids the language and confidence to stay connected rather than afraid. She offers simple ideas that help children engage in small, steady ways, which can lift the spirits of everyone involved.

Caregivers often lose independence, connection, and identity. Children lose clarity when they are pushed to the sidelines. Carol and I both believe the better path is to walk toward one another, even when the road is rough. There is sorrow in Alzheimer's, but there is also purpose, comfort, and moments of unexpected grace when families choose connection instead of retreat.

If you have a loved one with Alzheimer's, or if you wonder how to explain the changes to your children or grandchildren, I think this conversation will encourage you. There is life beyond the diagnosis, and there is a way to face it together.

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