Podlipodcast player Webplayer

Once Upon A Gene

Once Upon A Gene

Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy

Once Upon A Gene · Jan 2, 2025 · 31:30

0:0031:30

Listen in the Podli app 🎧

Follow your favourite podcasts, listen offline and in the car with CarPlay and Android Auto, and always pick up where you left off. Free to try.

Links & Resources:
Follow Their Journey on Social Media

Facebook: Paxtons Pioneers


Instagram: Paxtons_Pioneers




KCAL News Story
Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage

Episodes: Once Upon A Gene

PodliGet the free Podli app
↓ App