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The Rare Life

The Rare Life

236: When It Feels Like Your Fault | Accidents, Carriers, + Pregnancy What-Ifs

The Rare Life · Oct 22, 2026 · 58:20

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Did my body fail my child? Did I do something wrong? Could I have prevented this?

You don't have to be a genetic carrier to grapple with the complex feelings around whether you somehow caused your child's disabilities or medical complexities. So many of uscan carry this uncertainty and sometimes even unspecified guilt around these feelings.

In today's episode, we're digging into these complicated feelings, along with experiences shared by parents in our community. From finding out you're a genetic carrierto birth injuries, medical decisions, and spontaneous genetic mutations, we talk about the many different ways these feelings pop up for parents.

And a big thanks to our sponsor for this episode, themakers of the incredible documentary, The Zebra & The Bear!

Links:

Watch The Zebra & The Bear

Listen to Ep. 22: It's All My Fault.

Listen to Ep. 191: Abortion + Parents of Disabled Kids.

Listen to Ep. 77: To Those Who Cannot Say, "I Wouldn't Have Them Any Other Way"

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Join the Facebook group Parents of Children withRare Conditions.

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