Podlipodcast player Webplayer

The Rare Life

The Rare Life

209: Kenya’s Story | When Lightning Strikes Twice + Trusting Your Instincts

The Rare Life · Jan 15, 2026 · 43:02

0:0043:02

Listen in the Podli app 🎧

Follow your favourite podcasts, listen offline and in the car with CarPlay and Android Auto, and always pick up where you left off. Free to try.

When Kenya’s daughter was six, her body began changing in ways that felt impossible to ignore, even as doctors insisted it was normal. What followed was a long stretch of doubt, dismissal, and self-questioning, until Kenya finally found a specialist who confirmed what she had known all along: her daughter was experiencing precocious puberty.

In this episode, Kenya shares what it was like to fight for answers, navigate bias in pediatric care, and hold space for a child whose body and emotions were changing before she was ready. She also talks about the shock of facing the same diagnosis again with her second daughter, and how experience can simultaneously make you feel more prepared while still reopening old grief.

If you’ve ever had to trust your instincts and fight for a diagnosis your child needed, this conversation will hit close to home.

Links:

Join The Rare Life newsletter and never miss an update!

Fill out our contact form to join upcoming discussion groups!

Follow us on Instagram @the_rare_life!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

And if you love this podcast, please leave usa rating or review in your favorite podcast app


Episodes: The Rare Life

PodliGet the free Podli app
↓ App